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Dentists back mum of non-verbal boy waiting months in pain for hospital care 

The British Dental Association has urged a new team at the Department of Health and Social Care to step up and offer full support to colleagues treating patients in our hospitals, as it threw its weight behind the mum of seven-year-old Philip, a non-verbal autistic child from Macclesfield, who has spent almost four months living with a painful dental abscess while waiting for “urgent” dental treatment. 

Philip’s mother, Hayley Bramhall, is fighting for SEN children facing eye watering waits, and has launched a petition calling for a maximum 12-week wait for SEN children requiring urgent dental treatment under sedation or general anaesthetic, increased surgical capacity, and greater accountability for delays that leave vulnerable children in prolonged pain. [1] While Philip has waited months, Hayley reports other SEN children waiting years.

The Government has long focused attention on the fact decay remains the number one reason for hospital admissions among young children. However, while there has been a welcome upstream focus on preventive programmes like supervised brushing to bring down demand longer term, there has been no clear government effort to bring down these huge backlogs across secondary and community care. Efforts to improve access to ‘urgent’ care on the high street have also generated negligible results. [2]

A large proportion of paediatric extractions are impossible to deliver on the high street and need to take place within Community Dental Services, where government has failed to disclose waiting times, despite gathering data for nearly a year. [3] Across dentistry, year-long waits for hospital extractions can be the norm, and the BDA has stressed a new team at the Department of Health and Social Care must turn the page, with full waiting list transparency, and appropriate support and priority for those on the coalface, often treating some of the most vulnerable patients in society.

The BDA is aware of Trusts asking their dental teams to down drills and free up theatre space to help them better hit government targets for other procedures. [4] The professional body stresses that dentists are often fighting a losing battle for priority, and access to theatre space must not be treated as a zero-sum game by officials.

The Royal College of Paediatrics and Child Health (RCPCH) landmark State of Child Health report, which looks at the health of children across 12 indicators, warned this month that the UK is raising one of the unhealthiest generations in decades. The report stressed that tooth decay in children is entirely preventable, yet remains highly prevalent in England, affecting 22% of five-year-olds in 2024, with progress stalling since 2020, driving hospital admissions and disproportionately affecting children in more deprived communities. The cost to the NHS of tooth extractions among children aged in England was an estimated at a least £74.8 million in 2024.

BDA Chair Eddie Crouch said: 

"The Government has no shortage of soundbites on the tens of thousands of children ending up in hospital for dental extractions. But many kids facing year-long waits have yet to get anything that looks like real support from Westminster. 

"The reality is shocking waiting list data is getting buried, with dentists being told to down tools to help hospitals hit other government targets.

"What we're not seeing is the openness and resources to tackle this.”

“These aren’t just statistics, they are kids waiting months or even years struggling to eat, to sleep and to learn.

“These include some of our most vulnerable patients, children like Philip who cannot always communicate their pain.  They deserve so much better.”

 

 

Notes to editors:

[1] Meet Phillip

Seven-year-old Philip, a non-verbal autistic child, has spent over four months living with a painful dental abscess while waiting for “urgent” dental treatment. 

Some children needing dental treatment under general anaesthetic are reportedly waiting more than two years.

As with many children with SEN, Philip requires specialist care. He has been assessed within the community dental services and referred to hospital for treatment under general anaesthetic.

With an abscess at the front of his mouth, potentially several teeth require removal. These are baby teeth, which Philip also heavily grinds.

This pathway is stretched and under-resourced, and due to the huge number of routine paediatric cases requiring referrals, SEN children can often end up waiting months longer than others with the same condition to secure a slot, living with pain while their families fight to access the care they need.

Philip’s problem began over the weekend, when he developed a dental abscess and was in pain. Given his condition, he is extremely resistant to anyone looking in his mouth and finds dental appointments very distressing. 

After seeking an appointment with a specialist, Philip was given antibiotics and a referral to Alder Hey Hospital was made.

The referral was not initially categorised as urgent, and resulted in Hayley being told it would be 15 months to even get an appointment. 

After an urgent referral was made, the abscess became large again over a weekend, resulting in a visit to A&E.

Hayley rang Alder Hey numerous times and eventually managed to get him a cancellation appointment.

The dental team agreed that Philip needed a general anaesthetic to remove the tooth and to examine the rest of his mouth properly. He was then placed on the waiting list for surgery, and he now finally has a date.

By the time of his operation, Philip will have been living with this abscess and pain for almost four months.

Hayley Bramhall said:

“As much as he is trying to carry on being his happy little self, you can see how much it is affecting him. He’s changed the way he eats to avoid using that side of his mouth, and I’m constantly worried he’ll stop eating altogether because he already has such a restricted diet.

“When he’s in pain, he can hurt himself. I’m giving him paracetamol whenever he needs it, but I worry about how long he’s been relying on it. The hospital won’t prescribe any more antibiotics now. We just have to keep watching and hope the infection doesn’t spread.

“School have noticed the difference too. He often sits holding his mouth in his hands. It’s as though the pain is becoming normal for him.

“The impact on our family has been enormous. 

“It’s heartbreaking watching your child live with that level of pain and knowing there’s so little you can do. Philip spent his seventh birthday with an abscess and in intense pain.

“The whole process has been exhausting for me. Philip’s dentist told me the only reason he’d been seen as quickly as he had was because I kept pushing.

“Parents shouldn’t have to fight to get their children the treatment they need, especially when they’re in severe pain.

“There are so many children waiting on the list to be seen. It’s truly shocking.”

[2] Lack of progress on Labour’s manifesto pledge to deliver 700,000 additional urgent care appointments has seen Government refocus on delivering more appointments in primary care.

[3] Historically, waiting lists have revealed tens of thousands of children on yearlong waiting lists. Thousands of children in England facing ‘heartbreaking’ waits for NHS dental care | Children's health | The Guardian The Government began collecting new data on waiting times on a monthly basis since August 2025, but officials have not published any data, and have declined Freedom of Information requests. Many recent parliamentary questions have sidestepped the matter entirely.

[4] Vulnerable children denied surgery as cancer patients prioritised, Health Service Journal